The aims of the project are:
– Advance knowledge and ethical insight into existing benefit sharing frameworks with regard to human genetic resources.
– Explore paradigmatic international case studies to identify ethical concerns and possible solutions.
– Create an international network of experts and stakeholders on benefit sharing from human and non-human areas to explore synergies.
– Promote future policy developments by developing an “ethics health check” prerequisite for benefit sharing agreements involving vulnerable groups and communities in the context of human genetic resources.
Coordinator: Centre for Professional Ethics of the Faculty of Health (University of Central Lancashire, Pieston,UK)
Project partners: University of Witwatersrand (Johannesburg, South Africa), Research and Information System for the Non-aligned and Other Developing Countries (India), Assistance Publique-Hopitaux de Paris – Centre d’Ethique Clinic Cochin (France), Vilnius University (Lithuania), University of the Philippines (Manila, the Philippines).
Funded by: European Commission
Funding period: 2006 – 2009
Project website: http://www.uclan.ac.uk/schools/school_of_health/research_projects/genbenefit.php
