GenBenefit: Genomics and Benefit Sharing with Developing Countries – From Biodiversity to Human Genomics


The aims of the project are:

- Advance knowledge and ethical insight into existing benefit sharing frameworks with regard to   human genetic resources.

- Explore paradigmatic international case studies to identify ethical concerns and possible solutions.

- Create an international network of experts and stakeholders on benefit sharing from human and non-human areas to explore synergies.

- Promote future policy developments by developing an “ethics health check” prerequisite for benefit sharing agreements involving vulnerable groups and communities in the context of human genetic resources.

Coordinator: Centre for Professional Ethics of the Faculty of Health (University of Central Lancashire, Pieston,UK)

Project partners: University of Witwatersrand (Johannesburg, South Africa), Research and Information System for the Non-aligned and Other Developing Countries (India), Assistance Publique-Hopitaux de Paris – Centre d’Ethique Clinic Cochin (France), Vilnius University (Lithuania), University of the Philippines   (Manila, the Philippines).

Funded by: European Commission

Funding period: 2006 – 2009

Project website:  http://www.uclan.ac.uk/schools/school_of_health/research_projects/genbenefit.php

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