Naujausi A B C D E F G H I J K L M N O P R S T V W Y Z
Autoriai: Edited by Z. BANKOWSKI, A.M. CAPRON
Metai: 1991
ISBN: 9290360461
Leidykla: Geneva : CIOMS
Brūkšninis kodas: 4408609
Ieškoti VUB kataloge
Anotacija:
Conferences of the Council for Internation Organizations of Medical Sciences (CIOMS) are aimed at creating international and interdisciplinary forums to enable the scientific and lay communities to exchange views on topics of immediate concern, unhampered by administrative, political or other considerations. They discuss not only the scientific and technical basis of new developments in biology and medicine and other related areas, but also their social, economic, ethical, administrative and legal implications. Participants in these conferences are prominent representatives of different fields of medicine, the natural and social sciences, philosophy, theology, law and health policymaking. This multidisciplinary approach is felt to be the best means of obtaining a comprehensive picture of issues that do not fall within the exclusive domain of any one profession.
Contence
ACKNOWLEDGEMENTS V
INTRODUCTION VI
Z. Bankowski, Secretary-General, CIOMS
THE DECLARATION OF INUYAMA 1
OPENING OF THE CONFERENCE
F. Vilardell, President, CIOMS 4
J. Kondo, President, Science Council of Japan 5
E. Inouye, Chairman, Conference Programme Committee 6
H. Nakajima, Director-General, WHO 8
F. Mayor, Director-General, Unesco 12
Z. Bankowski, Secretary-General, CIOMS 14
KEYNOTE ADDRESS
J. Wyngaarden, Foreign Secretary, National Academy of Sciences, USA 16
HUMAN GENOME MAPPING
Human genome mapping: Application to genetic disease
R.G. Worton 21
Human genome project in Japan: Current status and future direction
N. Shimizu 33
Social geography of human genome mapping
B.M. Knoppers and C.M. Laberge 39
Public policy implications of the human genome project
R. M. Cook-Deegan 56
GENETIC SCREENING
Antenatal diagnosis of ?-Thalassemia in Sardinia
A. Cao 72
Presymptomatic testing for Huntington`s disease: Harbinger of the New genetics
N. Wexler 80
Genetic analysis of familial amyloidotic polyneuropathy
Y. Sakaki 93
An international code of ethics in medical genetics before the human genome
Is mapped
J.C. Fletcher and D.C. Wertz 97
Genetic sreening, policymaking aspects
K. Takagi 117
GENETIC THERAPY
Gene therapy for inborn errors of metabolism
R.Parkman and D.B. Kohn 126
Some ethical implications of human gene therapy
T. Friedmann 132
A gene transfer experiment
K. Yagi 139
Ethical reflections on human gene therapy
Paul Gregorios 143
Genetic therapy – Policymaking aspects, a parliamentarian`s perspective
A. Inayatullah 154
Health policy aspects of gene therapy
W.P. von Wartburg 162
REPORTS OF THE WORKING GROUPS
Group A: Human genome mapping 178
GroupB: Genetic screening and testing 181
Group C: Human gene therapy 187
REFLECTIONS ON THE CONFERENCE
A scientist`s and a physician`s perspective
H. Danielsson and B.O. Osuntokun 191
CLOSING OF THE CONFERENCE
F. Vilardell 195
LIST OF PARTICIPANTS 196
